First: THANK YOU for the buckets upon buckets of love and prayers. Gideon is doing MUCH better. He does not have a fever anymore. ALLLLL day on Monday Gideon and I slept and cuddled and tried to hug away that cough. He is still throwing up, but I have a great feeling that he is on the mend. Gideon will be getting an immunoglobulin transfusion tomorrow, and hopefully that will kick up his immunity even more. Please pray for him in that regard.
As far as what you can do... I was overwhelmed by the number of staff members who greeted me in my room this morning with questions about how they can help in the Methotrexate shortage. It is devastating that there is only enough left for two more weeks of use. Most diseases that use Methotrexate have alternative drugs that could be used, but not leukemia. It is the difference between life and a relapse for these precious babies. I urge you all to go here and follow the steps so that government officials find a longterm solution to this horrific situation. The FDA has made some strides to help in the near future, but it is a bandaid on a gaping wound. We need there to be a steady supply, even if this drug is not necessarily "profitable" and it's need is not as urgent to Congress compared to the other issues on the docket. Obama introduced a bill to help avoid this situation in October, but apparently it is not as crucial to these people. Sorry if I seem jaded. I am. I will never understand how capitalism and listening to the lobbyers with the largest sum of money somehow outshines human life. Call me what you will, but no amount of PAPER with dollar signs is more important than Gideon's life.
I have not only written several people, but I also called drug companies and talked to their customer service. I must say, APP was so very nice. I ended up talking to a guy about this issue and more for a LOOOOONG time. He even took the time to ask how Gideon was doing. I was impressed by that. Oh. I also called the president. I left him a message. I will let you know when his people talk to my people. In the meantime, PLEASE go to the link above and follow the steps. It does not take long. Since we don't have the money power to make this issue as dire as it is to our government, let's please shock them by the number of VOTERS who care for life.... Lives like Gideon's and so many of his little friends.