I've said it before, but I must repeat myself: Gideon's attitude and perspective blows me away. I fed him toast for breakfast yesterday morning and a few minutes later he made it to the puke bowl on his own and in time. I automatically feel my heart sink into the pit of my stomach when I hear him getting sick. It gets dunked straight into the gastric acids and begins to disintegrate away, layer by layer. Gideon halted this process of heart corrosion when he abruptly stopped puking, looked up at me, and with a huge vomit-smile he sang, "I guess THAT piece of toast doesn't wanna live in my belly, huh?" He is allowed to be my life stand-in, honestly.
Gideon also fell asleep last night holding a new puke bowl. He looked at me and said, "Not as cozy as Little Gog (his favorite stuffed animal), but that's okay." Then he rolled over and went to sleep. He makes me speechless the way he doesn't complain and is forever looking for the positive. It is only at night that I know he is feeling the effects of the chemo based on his groaning and occasional cry out for me. Otherwise, the boy never whines or pouts about any of this.
I'll let the clinic pictures tell the rest of the story. Just click on the pictures at the top right corner of the blog. Gideon will take you step-by-step through his day at the clinic. This time he had a spinal tap, spinal chemo, Vincristine in his port, and an increased dosage of Methotrexate in his port as well. I'm in a state of astonishment just by typing that. So much is swirling around in that tiny body. I'm praying it gets the sharks for good.
Mandy - Those pictures of Gideon are just amazing!!! I think he looks so much better than the earlier pictures you posted. I just can't believe him going through all of that and his expression is so positive.
ReplyDeleteJUST TOTALLY AWESOME!!!!!
Mandy, I've been checking in on your blog for a while now. I orginally came across you guys thru a post on someone's facebook page asking for prayers. I am just in awe over your family, your strength, your ability to share this journey and your amazing & strong little boy... I have two small boys myself (almost 3 & almost 5) and I'm pregnant w/my third child. Nothing proves that life is not to be taken advantage of more than your story. You are always in our prayers, we live in Portage and to see that little one walking into the hospital that I'm going to for my prenatal appointments brings the reality home. You guys are just awesome and little Gideon is beyond his years in his positive outlook! God bless you all! I can't wait to hear all about how he's beaten those sharks to oblivion!!!
ReplyDeleteBrooke
sending love and hugs tonight. i pray that gideon sleeps peacefully and gets to snuggle with his little gog instead of a puke bucket. he is one amazing kid. i am soooo in awe of him and of you. of your whole family. don't forget that his attitude is a reflection of you and the love you have shown him. you're an awesome mama! thank you for sharing a little part of your reality with all of us-- you teach and inspire us so much more than you know.
ReplyDeleteTom, I continue to send prayers upstairs for Gideon and your family. That boy is something else, his attitude and charisma is straight from heaven itself, I think that is why Alabama has a lyric "the closest thing to heaven is a child". God has his hands on this thing.
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